Welcome to the Wegeners UK website
This site was originally intended to be a guide to Wegeners Granulomatosis and the options available to those of us with the illness, and our families, in the UK. However, I have since discovered the Vasculitis UK Facebook page and Website, both of which contain more information and expertise than I’m likely to obtain for this site.
My name is Ryan, and I’m from Aberdare in South Wales. I was diagnosed with Wegener’s Granulomatosis over Xmas 2010, and am currently an outpatient at the Heath hospital in Cardiff. Due to damage caused by the disease while I was undiagnosed, I am waiting for a kidney transplant.
My partner discovered that there are more of us out there than we realised, with over a dozen of us ‘Weggies’ in the local area. Because of this, she organised a meet up at a local hotel so that we could share our experiences and meet others in the same situation. Hopefully this will grow, and meets will be arranged in other areas too.
If you have any suggestions as to how the site can be improved, or have any links to Wegener’s resources, please contact us through the link on the top of the page.