Welcome to the Wegener’s UK website
This site was originally intended to be a guide to Wegener’s Granulomatosis and the options available to those of us with the illness, and our families, in the UK. However, I have since discovered the Vasculitis UK Facebook page and Website, both of which contain more information and expertise than I’m likely to obtain for this site.
My name is Ryan, and I’m from Aberdare in South Wales. I was diagnosed with Wegener’s Granulomatosis over Xmas 2010, and am currently an outpatient at the Heath hospital in Cardiff. Due to damage caused by the disease while I was undiagnosed, I was waiting for a kidney transplant. Luckily, my family and friends volunteered to be tested, and in May 2013 my uncle donated his kidney.
My partner discovered that there are more of us out there than we realised, with over a dozen of us ‘Weggies’ in the local area. Because of this, she organised a meet up at a local hotel so that we could share our experiences and meet others in the same situation. We’ve since found out that Vasculitis UK are organising meetings around the country and regularly attend the South Wales meetings.