Welcome to the Wegeners UK website

Please note: The site is due to be updated over the next week or so. This means that the site may be unavailable from time to time, until the end of April 2012

This site is intended to be a guide to Wegeners Granulomatosis and the options available to those of us with the illness, and our families, in the UK.

My name is Ryan, and I’m from Aberdare in South Wales. I was diagnosed with Wegener’s Granulomatosis over Xmas 2010, and am currently an outpatient at the Heath hospital in Cardiff.

I decided to set this site up after finding out that a lot of the Wegener’s information that’s out there seems to be based in America. While the information is good, I wanted to try and bring together some localised information instead.

There is some fantastic information currently available at http://www.wegeners-granulomatosis.com/forum/, although as a large number of the members are American, lots of the information is country specific.

This site will hopefully turn into a UK based partner for their forum, and help to give us a UK based perspective and guide to localised information.

My partner also discovered that there are more of us out there than we realised, with over a dozen of us ‘Weggies’ in the local area. Because of this, she organised a meet up at a local hotel so that we could share our experiences and meet others in the same situation. Hopefully this will grow, and meets will be arranged in other areas too.

If you have any suggestions as to how the site can be improved, or have any links to Wegener’s resources, please contact us through the link on the left of the page, or join us on the message boards.